I was born on August 17th 2006 as one of a twin. Grace, my sister, sadly went to heaven and I spent 7 weeks in Intensive and Special Care as I was born 10 weeks premature, this is probably the cause of my disability.

So you now see why I say "My journey so far" as I had one hell of a journey to get here in the first place!

I was a happy baby, always smiling and laughing and being the centre of everyone's attention (some things will never change). I was assessed by the health visitor at 8 months and she noticed my Achillies tendons were unusually tight. Mummy was asked to keep an eye on my later developments such as standing and walking to see if I stood and walked flat footed or on tip toes. As predicted I did walk on tip toes, consequently losing my balance and falling frequently. I was referred to the RNOH (Royal National Orthopaedic Hospital) but I was never officially diagnosed with having Cerebral Palsy until December 2008. Since finding out I had CP I have undergone regular physio sessions to help stretch my muscles and a Botox operation to relax my muscles, allowing me to put my feet down flat. However this is only a temporary measure. I also wear shoe splints up to 10 hours a day, these allow me to walk flat footed, but are very uncomfortable and extremely hot in the summer time.

Mummy says Im a "Bright little button". My disability does not effect me intelectually, it only effects my physical ability and I tire quicker than most.

Macey x

......................................................................................................

Macey is a determined, caring little girl who deserves to enjoy her life to her optimum potential. Macey is very much loved by her family and everyone who knows her. As Macey's parents we are extremely proud of her. As Macey's parents, we want the very best for our Daughter, and by having SDR we believe we a trying to achieve just that.

Nicola & Paul